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About Fern Cohen, an Active Individual with ALS

4/5/2016

 
by Lyn Lomasi, Write W.A.V.E. Media Staff
Orchid House Botanic Gardens
Fern Cohen is a freelancer who makes multiple efforts to help others facing debilitating symptoms, such as the ones she faces with ALS (amyotrophic lateral sclerosis). She is also working on writing a book and she does this, not letting her ALS, or Lou Gehrig's disease, diagnosis interfere.

"Up to age 12, I lived with my family in a NYC housing project in Brooklyn. Then, my parents followed the 'American Dream,' bought a home, and moved us out to Long Beach, Long Island," she said. She went on to earn her bachelor's degree in both French and Spanish and became certified to teach both.

Fulfilling the job of a teacher would come later. First, she would pursue a life-long dream to be a "woman of the world." "I wanted to travel, and I had heard that if you worked for an airline, you could get free or discount travel," Fern said. In 1977, she began what would become an 11-year career in the airline industry. Fern enjoyed the many positions of this career, which took her all over the world. Eventually, she would end up earning a master's in travel and tourism.

"In 1997, I decided to return to my roots and give back to society," she said. This is when she made use of her teaching degree, teaching at a public high school in East Harlem, N.Y. She taught French as well as Spanish here, until 2004, when she left fully tenured. During this same time, she also studied collage and mixed media art in NYC. She was thoroughly enjoying managing and living her life.

At the beginning of 2003, she felt the first symptoms. Experiencing extreme fatigue after normal activities, like bicycle riding and exercising, came first. Next came a loss of balance, causing her to trip and fall regularly. As a foreign language teacher, the symptom of slurred speech was one of the hardest. Then came the breathing difficulties, which were shrugged off as a symptom of her asthma and allergies. It was January of 2004, after going through numerous doctors and a long period of tests, that Fern got the devastating diagnosis of ALS. The symptoms she had been living with finally had a name.

Cohen continued to teach for the remainder of the school year. However, when she put in a request to teach at a school without steps, due to the fact that steps were nearly impossible for her to endure, the request was not fulfilled. She was told by the Department of Education that her needs could not be accommodated. It was then that she was forced to resign and collect disability.

Not being used to staying at home, Fern had a hard time managing this new life. ALS did not change who she was on the inside. She still had the intellect that would have allowed her to continue teaching. However, it wasn't seen that way by others. In Fern's words, "I find that they see the wheelchair and don't see that there is a person sitting there."


For Fern, isolation is the most devastating of ALS symptoms. Many of her friends have disappeared since her diagnosis with ALS and she says that even family members can be uncomfortable in her presence. However, the friendships she lacks in that area are greatly outnumbered by the ones she has acquired through the Internet. Most of the positive impact she has had on others has come from her outreach efforts in meeting people on social sites for those with disabilities, as well as through her blog.

While having ALS has forced Fern to use a communication device for speaking and to make use of aides for various tasks, it has not stopped her from looking at positive aspects of life. On this she said, "ALS has forced me to slow down, mentally and physically and see things I never stopped to look at before... Always fiercely self-sufficient and independent, I have had to learn to ask for and accept help. And with all the medications I take, there is no room for carelessness. If I could communicate with every ALS patient, I would say: Don't wait to die; live in a way that allows you to realize a dream. And don't dwell on what you can't do, but rather make the best of what you can still do."

She definitely lives up to that statement every second of every day.

*I originally published this on the former Disaboom via the former Yahoo Contributor Network.

Bionics; The Merging Of Flesh And Machine

7/24/2015

 
PicturePhoto courtesy of www.kiwinz.co.nz
by Dennis Townsend, Contributing Writer

The world of bionics has become the most beneficial scientific discovery in this century and because of that, there are a lot of people who now can live independently despite their disability. It’s a shame that most of the development for this kind of technology was created to address maimed soldiers from the battlefields. But as with all our ideas, they never seem to be important until a tragedy brings a need and with the onset of biotechnology, at least we can try and repair the damage with as much technical no how as we did to invent the weapons that done the damage in the first place.

The first FDA approved robotic exoskeleton was given the okay for home use back in June of 2014 and in that same month, we all got to see a paraplegic man make the World Cup’s opening kick using a mind controlled exoskeleton. Thanks to advances in biotechnology, replacing a severed limb or overcoming paralysis is becoming commonplace in the world. The IMES System which was developed by the Illinois Institute of Technology utilizes sensors placed inside muscles. A brain chip, a neurobridge, bypasses damaged nerves to stimulate the muscles of a paralyzed arm, hand or fingers. Lifehand 2, a joint collaboration by EPEL of Switzerland and SSSA of Italy is a robotic hand that can give the user the ability of touch and can determine if a object is soft, hard, round or square. ReWalk Robotics have moved forward in leaps and bounds with their motorized exoskeleton that assist with movements at the hips, knees, and ankles. Now those that were totally paralyzed can actually start to walk again. And with the latest technical wonder, 3-D printing, any and all things are possible.

While advances it technology is a great achievement, I believe the next task is to make it so that "everybody" has the chance to utilize the new science of robotics. No one should have to sit and watch a loved one suffer through paralysis of any kind just because the cost is too far out of reach. Politicians like to talk about helping the American people but mostly they talk loud and say nothing. When most new technologies come to light, they have been worked on and refined over years and come with a hefty price tag for research and development. But truth be told that a lot of funding for these projects come from taxpayers. Taxpayers who are placed on the back burners and are told that they can’t afford that 3-D plastic hand that could help a child grip his or her  toy for the first time. We have billions to spend on weapons of war but when it comes to helping the poor and helpless, Republicans and some turn-coat Democrats like to talk about "broke America." While affordable healthcare is here for everyone, let’s go one step further and make new scientific achievements available to everyone also by making it affordable. A poor child's dream of gripping a baseball or a spoon or being able to hug his mother for the first time is just as precious as the well to do child's dream. Money should never be a barrier in making dreams come true.

DLTPONCHO33

Circuit Training With a Disability: Is it for You?

12/27/2014

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by Lyn Lomasi, Write W.A.V.E. Media Staff
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Circuit training is becoming increasingly popular among people of all walks of life. It is known for its quick results as well as versatility in adaptation to many exercise forms. Circuit training is an exercise method that can be adapted to fit most forms of exercise and can even be used for those with a disability. In fact, circuit training is being used in most popular gyms and exercise programs.

Circuit training is simply a set of exercises performed quickly in small increments, generally timed and categorized. Because the exercises used can be adapted to any exercise program, circuit training can be a good fit for someone with a disability. This method of exercise can be used for injury rehabilitation, weight loss, boosting energy levels, to adapt to disability and life tasks, for strength endurance, routine fitness maintenance and most any other exercise form.

One of the main reasons circuit training is so useful is that it causes the body to adapt to different movements and positions than normal. It can exercise areas that may not be used otherwise. Further benefit, of course, lies in the ability to adapt the method to anyone's specific needs and to any form of exercise. From beginner to expert, most anyone can use circuit training in combination with various exercises at their appropriate level. Those with disabilities 
will appreciate the flexibility of this customizable way to adapt to life tasks.

A very important aspect of circuit training in relation to disabilities is that it can actually help some people adapt to their specific disability. The Miami Project to Cure Paralysis at the Miller School of Medicine, University of Miami is using Circuit Resistance Training (CRT) to help patients with spinal cord injuries. So far, the documented research shows promising results, with those who used the CRT reporting that certain life tasks become easier to perform after using the CRT. Reported benefits include increased fitness, as well as strength in muscles that are not paralyzed, showing that patients were able to better adapt to their disability. Currently, the research on this is a continuing effort.

Circuit training has been used in many different fitness activities for those with disabilities. In addition to CRT, water fitness is used to help someone with a disability adapt. Water fitness is relevant to those with disabilities, as some conditions (such as paralysis) may require an exercise that needs very little weight bearing down on the person. When in the water you can feel weightless, which makes it much easier for those with certain disabilities to adapt to the exercise. In turn, the exercise provides benefits that also help a person with a disability adapt to their disability as well as certain life tasks.

There are many different ways to incorporate circuit training into an exercise program for those needing to adapt to a disability. Anyone considering this should first consult with a medical professional, as every form of exercise is not for everyone. However, due to the flexibility, it is possible that circuit training could be the answer for many needing to adapt to a disability.


*I originally published this via Yahoo Contributor Network

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How to Write a Grant Proposal for a Disabilities Cause

12/10/2014

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by Lyn Lomasi, Staff Writer
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To help along a grassroots cause, fundraising is generally required. In the case of persons with disabilities, this is no different. In some cases, this fundraising source will come in the form of a grant. In order to get any grants, a proposal will need to be written. When grant-writing in the form of a proposal, it is very important to know your cause, have a general plan that you can refer to, as well as know the expected outcome of the community project at hand. It is also important to have an idea of what the final costs of your cause for persons with disabilities will be. Some community development projects can change course midway, but be sure to at least have an outline of the possible outcome available as reference. This way, the proposal for any needed grants will be easier to write with accuracy.

What is Your Cause?

A potential grassroots fundraising source will need to understand what exactly your cause is, such as which group of people with disabilities you wish to help and how, and why their available grants could help. Be sure to make it known in detail in the fundraising proposal, but with simplicity, so that it is not difficult to tell what your organization's specific needs are. For example, if you simply state that you want to help people with disabilities, this gives the fundraising source very little information. If you state that you want to provide a group home to foster children who are in wheelchairs, this is much more specific. Of course, you would also include in your proposal how you plan on doing this, as well as estimated costs.

Laying Out the Proposal

The Foundation Center notes that a grant proposal needs to be laid out specifically under the directions that the funding source provides. Under an example that the foundation provides, the first part of the fundraising proposal could be an umbrella statement and summary, one page long. The second part could explain the reason why the community development project must be carried out. Two pages is the recommended length for this section. Next, you could discuss how the project will be carried out and monitored. Three pages should cover this well.

Financial Plan and Conclusion

The budget is the next discussion item mentioned. Laying out the financial plan (including grants, other fundraising, and available funds) with any necessary notes on one page could follow. Next may be the history of your organization (or it's governing organization). Include the purpose of the community development organization, as well as who it serves and how, such as "service dogs aid those in wheelchairs." This may take up one page. The final component of the grant proposal could be a conclusion that sums up all the key factors. This could be two paragraphs.


Finalizing the Proposal

Once your grant proposal is written, be sure to get a few opinions from colleagues and friends. At times, someone else can notice an error or a missed point that otherwise may have gone unnoticed. Having several sources for this will ensure that the proposal is well-written and representative of your specific community project.


*I originally published this via Yahoo Contributor Network

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How to Prepare Your Kid with a Disability for Camp

11/6/2014

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by Lyn Lomasi, Staff Writer
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When learning they will be attending a camp, some children will be ecstatic, while others may be much less enthusiastic. In either situation, it is a good idea to emotionally and physically prepare your child for camp. Kids with disabilities, as well as parents preparing them, may sometimes face even greater challenges in this area than others.

Dealing With Emotions

Some children may not be very excited to attend camp. They may be concerned about being away from the parents or friends for a long period of time. They may also be concerned about spending so much time with strangers. To ease a child's concerns and fears, discuss the positives of the camp, such as any fun activities your child might enjoy doing. If it is a camp for kids with disabilities or special needs similar to those of your child, let your child know he or she will get to meet children with similar needs as their own. Another thing to remember is that kids can be cruel to each other. There may be some teasing involved. With disabilities involved, it may compound that issue. Do some research and be sure your child is prepared to possibly deal with this. Even children who are overly excited will still need to be prepared for attending a camp. It is a big adjustment to be away from family and home life. Focus on the positive aspects of the camp to emotionally prepare your child for this rewarding experience.

What To Tell the Camp

The camp will need to know a variety of things about your child. As the parent, it is your job to be sure you inform the camp of any special needs or accommodations your child might have. One of the most important necessities a child attending camp will need to have is an emergency contact list. For kids with disabilities, this list may be even more important. Ideally, an emergency contact list should include how to the mother and father of the child, backup emergency contacts in case the parents are not available, as well as phone numbers for doctors, caregivers, and any other pertinent contacts. Kids with disabilities may have extra contacts on this list, such as caregivers and specialists. The camp should be alerted of all allergies, medical conditions, disabilities, special needs accommodations, or other pertinent information pertaining to the child's safety and well-being.

Transportation Arrangements

Some camps provide transportation. However, not all of them do. Even if the camp you have chosen provides transportation, it may not always be accommodating for kids with disabilities. Check with the camp your child is attending to see if they provide transportation and if so, what the mode of transportation will be. Ask questions about the accommodations and do not be afraid to be specific. If the camp does not provide the type of transportation your child will need, look into alternative modes of transportation. If you cannot bring the child to the camp yourself, see if a family member, friend, or relative is willing and has the appropriate accommodations to do so. Be sure that whichever mode of transportation is selected is available for the return trip as well.

*I originally published this via Yahoo Contributor Network




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Different Types of Extracurricular Sports for Students with Disabilities

11/6/2014

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by Lyn Lomasi, Staff Writer
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Different types of extracurricular sports options can help make it possible for people with disabilities to participate in a variety of sporting activities. Electronic, segregated, unified, parallel and regular sports all are options for persons with disabilities. There are some major and minor differences between these five methods of extracurricular sports activities available to students with disabilities.



Electronic Sports


Electronic sports are those extracurricular activities in which the results are computed electronically. These types of sports are useful to those with disabilities, as they can make game play more accessible, depending on the individual's disability. This can also prevent any unfair scoring from taking place. An example of an electronic extracurricular sport is bowling. In bowling, a computer keeps track of the turns and scores of players. It is all displayed on a monitor near the bowling lane. Other electronic sports for extracurricular activity include the shot put, the high jump, track and field and power lifting.

Parallel Sports

In parallel sports, those with disabilities run their sports activities during a certain meet or event after or at the same time as those without disabilities. For instance, if the event in the competition or track meet is a long jump, those without disabilities would complete their event together. Then, immediately following would be the same event for individuals with disabilities. At times, the two groups may participate together in the same event. Paralympics is one example where parallel sports are effectively used for students with disabilities. Special Olympics is another organization that employs parallel, extracurricular sporting methods.

Segregated Sports

When students with disabilities play on segregated sports teams, they play and compete only with each other. They do not compete in extracurricular activities with individuals who do not have disabilities. This is common in special programs created for individuals with disabilities. Many public and private schools offer these options to students with disabilities. The disabilities can be either mental or physical.

Unified Sports

Unified sports are those in which students with disabilities participate in the extracurricular sports activities with others who do not have disabilities. An example of unified sports would be a team for students with disabilities accepting those without disabilities to play on their team for reasons of either filling team number requirements or just to be inclusive of everyone. The same could occur in reverse where a "regular" sports team allows students with disabilities to participate.

Regular Sports

This, of course, is when students with disabilities play on "regular" sports teams. Similar to unified sports, everyone plays together. However, the difference is that with regular sports, there may or may not be mention of a student's disability. Accessibility issues are addressed when or if they arise. For instance, someone who has a prosthetic arm or leg could play along with students who do not have any physical disabilities. This type of interspersion is often done to foster the notion that everyone is equal and should play and compete on teams together.

*I originally published this via Yahoo Contributor Network


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How to Utilize Accessible Bowling

9/18/2014

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by Lyn Lomasi, Staff Writer

Wheelchair sports are growing more and more popular as those with disabilities realize that they can do anything anyone else can. Sometimes it may require creative thinking and some adaptive technology, but it's definitely possible. Adaptive sports can be found all over the United States. One only has to look. Accessible bowling is one of the adaptive sports that has grown in popularity and may continue.

There are accessible bowling alleys and even leagues especially for those with a disability. Some could feel more comfortable in a league that specializes in wheelchair and adaptive sports. Although a good number of traditional bowling alleys do have accessible lanes. Either way, this is an adaptive sport that can be easily enjoyed by people with disabilities.

Bowling is naturally a very accessible sport. However, some people with disabilities who require the use of a wheelchair may still enjoy an even more authentic way to enjoy adaptive sports. That's when they can use adaptive technology, such as the IKAN Bowler. The IKAN Bowler actually allows the bowler to release the bowling ball much in the same way as a person who stands to bowl, rather than one who is seated in a wheelchair.

There are many other types of equipment and accessories that are approved for, and can be used to, make bowling even more of an adaptive sport. Some of those include special ball ramps that attach to a wheelchair or walker, as well as the front of the bowling lane. There are also special ball pushers for getting the bowling ball to roll down the lane while seated in a wheelchair.

Accessible bowling exists both for adults and kids. It even exists in the Special Olympics International, or SOI. SOI allows people with varied disabilities to participate in a variety of adaptive sports. Bowling is actually an official activity of not only the SOI, but also the United States Deaf Sports Federation (USADSF), the National Disability Sports Alliance (NDSA), and the American Wheelchair Bowling Association (AWBA).

Getting involved in accessible bowling sports is as simple as finding a bowling alley or league that you want to participate in, which is not very hard at all, considering how accessible bowling truly is. Many bowling alleys are accessible, even if they do not advertise themselves that way. In addition to bowling, there are many other accessible and adaptive sports available to those with disabilities.

*I originally published this via Yahoo Contributor Network

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AgrAbility.org: Helping People With Disabilities in Agricultural Fields

9/8/2014

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by Lyn Lomasi, Staff Writer

Persons with disabilities who live in rural and agricultural communities now have an easily accessible location for equipment and other resources. Agrability.org was created as an easy way to locate various organizations that provide services to those living with disabilities. These organizations specialize in providing disability resources and equipment to farmers or others with disabilities who reside in agricultural and rural areas. Agrability.org is an extension of Purdue University in Indiana.

Farm workers with disabilities may require specially customized equipment and tools in order to get the job done. Because of this, there are companies and organizations who specialize in these custom tools and equipment. However, some people may not know what equipment they need or where to find that information. This is one area in which resources and information from Agrability.org can help.

One organization accessible through Agrability.org is the Warm Springs Resource Center. This organization provides educational, social and cultural resources for anyone with disabilities. People with disabilities can be linked to resources within their community or over the internet. The Warm Springs Resource Center also houses the Texas Agrability Project, which is also easily accessible through Agrability.org. Through a combination of both of these organizations, those with disabilities may access information on support groups, accessible technology and equipment and other resources.

Also accessible through Agrability.org is the Breaking New Ground Resource Center and Outreach Program (BNG). Through this organization, farmers with disabilities may access information and resources on obtaining agricultural equipment, tools, machinery and a variety of other relevant resources. The equipment, tools and machinery are all specially designed for farm workers with disabilities.

Dr.Val Farmer, Ph.D. is also cooperating in this effort. Through his website, accessible through Agrability.org, those with disabilities may access self-help and medical articles. One of his topics readers may find interesting is farm stress, among other related articles. The Research and Training Center on Rural Rehabilitation Services (RTC: Rural), with funding from the National Institute on Rehabilitation Research, strives to help those living with disabilities lead a more independent life. This is done through research, resources and training.

Through the organizations above, as well as others, Agrability.org has been helping those with disabilities gain access to important resources, such as tools, skills, technology, information and equipment. With this simple and accessible platform, farmers and others with disabilities who are living in rural and agricultural areas should be able to more readily access any resources they may need.

*I originally published a version of this via Yahoo Contributor Network


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5 Accessible Gardening Tools 

9/8/2014

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by Lyn Lomasi, Staff Writer

A person with a disability can garden just as well as one who doesn't have one - and many modern-day gardening tools are making it even simpler. Garden tools customized for ease of use are growing more popular and allowing even those who were unable to garden previously the freedom to do so with ease. From yard work to planting and caring for a garden and even creating an accessible garden, there are many gardening tools available to help make gardening more accessible to everyone.
Outsunny Folding Garden Kneeler / Kneeling Bench Chair

This garden kneeler is perfect for those with a variety of disabilities, but especially those with problems in the knees or back. The seat area can actually be used as a seat or as a kneeler  cushion and the arm supports make it even more convenient and accessible. This handy device is lightweight and designed specifically for relieving pressure from the back and knees. This item can be purchased at many home improvement and gardening centers at a relatively affordable price.

OXO Good Grips Gardening Bulber

Planting bulbs can often be time-consuming, as well as take great digging efforts, which can sometimes strain the hands. Using this bulb planter can save the hands some work, as well as save time by eliminating several steps from the planting process. Simply place the bulb planter into the soil and twist to remove the soil. Place the bulb in the empty spot and use the bulb planter to release and replace the soil. Those with arthritis, carpal tunnel syndrome or other conditions of the hand will appreciate this device greatly. The Good Grips Quick-Release Bulb Planter can be found at a variety of gardening Web sites and is very cost-effective.

Backyard Inventors SN18 Snake Rake

This rake is excellent for anyone who uses a wheelchair or those with back injuries. The handle is adjustable and bends down to accommodate for various positions. The pivoting of the handle makes raking simple from many different positions and angles. With this handy garden and yard tool, doing yard work will be more convenient. To purchase this handy rake, simply visit a home improvement or garden center near you or purchase one from their Web site.

Gardena 3745 Combisystem 59-Inch Aluminum Garden Tool Handle

With an ergonomic design, as well as the ability to attach to most hand tools used in the garden, this tool will ease back pain associated with some of the tasks of gardening. For those with injured back or conditions affecting the back, this ergonomic gardening tool will come in handy. This back-saving handle can be found at many home and garden retailers, including online locations.

Easi Grip Garden Tools Set of 3

These are designed for those who may have a hard time gripping standard gardening tools. Easi Grip’s lightweight but sturdy tools are equipped with an ergonomic design that that should help prevent wrist and hand injury. The Easi Grip Garden Tools will make gardening a more accessible task for those with weakened muscles in the arms or hands or with other hand conditions, such as arthritis or carpal tunnel syndrome. These can be found at many garden and home improvement centers both online and in physical locations.

*I originally published a version of this content via Yahoo Contributor Network
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Accessible Treehouses Should Be Available Everywhere

8/28/2014

1 Comment

 
PictureImage (c) Ron Cogswell via Flickr.com -- The Pepper Family Accessible Tree House -- Citizens Park Barrington (IL) May 2011
by Lyn Lomasi, Staff Writer

It is practically every kid's dream to own, or at least play in, a treehouse. Unfortunately, for many kids with a disability, that dream may not come true. The Treehouse Guys (formerly known as Forever Young) want to help change that fact about treehouses. The organization's goal is to have universally accessible treehouses for kids with a wheelchair or disability in all 50 states.

Accessible treehouses are much like traditional treehouses. There are some differences to make them easier to access for kids with disabilities. However, the main concept is still the same. An accessible treehouse is still a playhouse for kids that is built around or inside of a tree or trees. It just has the added benefit of being accessible to a wheelchair, as well as to kids with a variety of disabilities.

Children in wheelchairs, with a variety of disabilities, as well as those without disabilities, can access these treehouses. Some traditional treehouses require entry through climbing a rope or ladder. Treehouses by The Treehouse Guys instead have a wheelchair accessible ramp. In fact, the entire treehouse can be navigated with a wheelchair.

The Treehouse Guys treehouses are universally accessible, which is great news for kids with disabilities who may or may not require a wheelchair. The treehouses are also only built in trees examined by an arboreal specialist to ensure they are of quality. They have to be able to support the treehouse, as well as kids and wheelchairs. As the company stated (when branded as Forever Young), "A good treehouse is only as good as the trees that they are built in."

Anyone can get a wheelchair accessible treehouse built. If money is an issue, The Treehouse Guys will do all they can to help those in need get a universally accessible treehouse. Sometimes that includes helping the recipients plan fundraising, which can come from many sources and be done in a variety of ways.

"I'm glad that the kids in wheelchairs can actually get into a treehouse, because now they don't feel so left out," says Delaney Sekinger, the sister of a boy with cerebral palsy.

Then, there is Sara Reiser who simply states "I never been to a treehouse in all my life. I never had a tree house to go to," which is what many kids may feel like, especially those in a wheelchair or with a disability. Even if they have been around treehouses, it is likely they were not accessible to kids with disabilities.

That is why universally accessible treehouses are so important for kids. Not only can they provide an amazing opportunity for kids with disabilities, but they can also help bring together a community. Kids with and without a wheelchair or disability can play together in the treehouse.

Jennifer Williams, who is a teacher, said in regards to the accessible treehouse in Virginia, " I think it's important that they get to experience what all other kids get to experience, that they are part of what every other kid could get to see, touch and feel. I think they enjoy doing what their peers will be able to do."

Sources:
The Treehouse Guys/Forever Young
WGNTV.com "Everybody's Tree House"
NBC 29 "Wheelchair Accessible Treehouse" by Ken Slack

*I originally published this on Disaboom.com via Yahoo Contributor Network
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