So, as long as I'm not flaring or just generally feeling like crap, I have more time to get things done than the average working person. Oops, that doesn't sound very positive does it? On the other hand, it really is.
Lupus allows me to stay home and do all the things that no one else in the house has time for. And when I am feeling good, I'm more than happy to do those things. That's because it sucks to feel bad and not have the option of getting things done and it sucks to not be able to work. It sucks to feel like you are not contributing to the household.
So Lupus, quite indirectly, hands me a way to be a productive member of the household by forcing me to stay home where all the action is. Sure, it's a bit of a trade off. Sure, there are times when the bad days keep me down. But when those good days come, I can really kick some ass and that feels damn good to someone who can't work at a conventional job.
Because however soul sucking and miserable that former job might have been, it was still nice to have the security of that regular paycheck and therefore, the knowledge that I was making a difference.
So, thanks Lupus, for giving this little family the gift of someone who can stay home and get things done. Even if that someone is me and getting things done is a challenge some days. It's all good and it keeps me from feeling like I don't contribute.
Oh and thanks for forcing me into early retirement too. After 35 years of working several jobs at a time to support my family, I really needed a break and without Lupus, I never would have left my job.
And another PS – Thanks to all my family members, who are always sure to say how much they appreciate what I do for them and who help me and comfort me whenever and however they can.
I am so lucky!